What is the Faces Project?"
"Faces" will be a video short including statistics, facts and quotes about ALS interspersed with pictures and inspiring graphics of People with ALS. Watch our short video and imagine all the pictures from our ALS Walk were replaced by your pictures:
I hope to get the music rights to several songs including U2's "I Still Haven't Found What I'm Looking For." I see the project as a PSA that will also be edited into commercials. Any and all proceeds derived by this project will benefit the ALS Association. "Faces" will be produced with a group of select advisors including the ALS Association.
What will you have to do if you agree to participate in "Faces?"
First, you have to sign up for "Faces." You can do it by clicking on any sign up banner on this page. The sign up form asks you a few questions and to provide one (1) picture of you or you and a group (e.g.: family, friends, pets, costumed characters, other...).
Once you sign up you will get an e-mail from us asking you to:
* Complete a Personal Release Form agreeing to
participate in the Faces Project.
* Complete a short questionnaire about yourself and
your ALS. Why the questions? We will be summarizing
the answers for a profile of the people who participate
* Provide four more photos or images of yourself (two from
before you were diagnosed and two from after you were
Who am I? Who are "The Happy Huntleys?"
My name is Jon Huntley and I have ALS. I was diagnosed on September 18, 2012. My first noticeable symptom was a hoarse voice and difficulty enunciating words. These were followed by right arm weakness and right leg weakness. "The Happy Huntleys" started as my Los Angeles County Walk to Defeat ALS team's name. It has grown to my voice as an ALS advocate via Facebook, Twitter, LinkedIn, Tumblr and this website. The Happy Huntleys logo is a drawing my daughter made of our family for our 2013 walk t-shirt.
How did we come up with "Faces?"
"Faces" started as a project to mark the one year anniversary of going on full time disability from my job of ten (10) years. I wanted to mark the moment with a project benefiting the ALS Association. So I asked my friends and family on The Happy Huntleys Facebook to make suggestions and vote for their top idea.