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What is it like when your brain is fully functioning but your body won’t cooperate? Jon Huntley offers readers an incredibly honest peek inside his reality in “Pockets of Joy”. With the help of technology, Jon was able to circumvent the physical limitations of an ALS diagnosis and set his mind free – and what a mind it is. Full of bravery, insight, humor and, most of all, love, Jon lays bare the everyday struggles and joys of living trapped in a body that doctors tell him will never recover its ability to communicate through speech and movement. His words should be required reading for doctors, nurses and caregivers who work with patients with communication struggles. And for the patients who struggle to tell those around them what they need, what they want and how to help, “Pockets of Joy” will serve as a beacon of hope and an invitation for other patients to empower themselves.
Julia Swift, Writer and
Champlain College Professor5